2025 โ€ข reference

The Double Empathy Problem

"The 'problem' isn't in autistic people โ€” it's in the interaction between different cognitive styles." โ€” Dr. Damian Milton (2012)


The Traditional View

Old framework:

  • Neurotypical person: Normal empathy โ†’ Understands others โœ“
  • Autistic person: Deficit empathy โ†’ Cannot understand others โœ—

Problem: Places all deficit in the autistic person. Ignores that neurotypicals also struggle to understand autistics.


The Double Empathy Model

New framework:

  • Both groups struggle to understand each other
  • Empathy works well within groups (autistic-autistic, NT-NT)
  • Difficulty arises across cognitive styles
  • Neither is deficient โ€” they're different

The Evidence

Crompton et al. (2020)

Design: Information telephone game.

Findings:

  • All-autistic groups: High accuracy โœ“
  • All-neurotypical groups: High accuracy โœ“
  • Mixed groups: Significant degradation โœ—

Conclusion: Autistic people communicate effectively with each other. The problem is crossing neurotype boundaries.

Sheppard et al. (2016)

  • Neurotypical people form negative first impressions of autistic people
  • Within 10 seconds
  • Based on non-verbal presentation alone

Implication: NT people fail to empathize with autistic social style.


Connection to Monotropism

Why Communication Styles Differ

Monotropic communication (autistic):

  • Deep focus on topic
  • Direct, information-rich
  • Less attention on social meta-communication
  • Value accuracy and depth

Polytropic communication (neurotypical):

  • Attention distributed across content + social dynamics
  • Subtext, reading between lines
  • Small talk, phatic communication
  • Value social smoothness

Different attention allocation creates different communication styles. Neither is wrong.


Real-World Example

Job interview:

NT interviewer sees:

  • No eye contact โ†’ "disinterested"
  • Monotone voice โ†’ "no enthusiasm"
  • Direct answers โ†’ "poor social skills"

Autistic candidate experiences:

  • Eye contact is painful โ†’ focusing on questions
  • Voice is natural โ†’ being authentic
  • Direct answers โ†’ being honest

Double empathy: Both failing to read each other's cues.


The Reframe

From: "Autistic people have social deficits"

To: "Autistic and neurotypical people have different social styles, creating mutual misunderstanding"

Responsibility: Shared. Accommodation should go both ways.


Who Developed It

Dr. Damian Milton โ€” Autistic researcher at University of Kent. Chair of Participatory Autism Research Collective (PARC).

He cites Murray, Lesser & Lawson's monotropism work as foundational.


Key Resources

Primary:

  • Milton, D. (2012). "On the ontological status of autism: the 'double empathy problem.'" Disability & Society, 27(6), 883-887.

10-year update:

  • Milton, D., Gurbuz, E., & Lรณpez, B. (2022). "The 'double empathy problem': Ten years on." Autism, 26(8), 1932-1942.

โ†’ PDF download


Why It Matters

Double Empathy + Monotropism = Complete Reframe

Together, these theories explain autistic experience without deficit:

  • Monotropism explains how attention works differently
  • Double empathy explains why communication breaks down

Neither is a flaw. Both are differences.

โ†’ Back to Related Theories


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